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    The ethical and legal regulation of human tissue and biobank research in Europe

    Proceedings of the Tiss.EU Project

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    Contributor(s)
    Beier, Katharina (editor)
    Schnorrer, Silvia (editor)
    Hoppe, Nils (editor)
    Lenk, Christian (editor)
    Collection
    AG Universitätsverlage
    Language
    English
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    Abstract
    Human tissue and biobank research is of increasing importance for understanding the causes of widespread diseases and developing effective therapies. However, while the success of biobank research depends on the availability of a large number of samples and the consolidation of collections across country borders is very desirable from the perspective of researchers, the legal and ethical requirements for the procurement, storage and use of human tissue samples are rather heterogeneous across different countries. Moreover, the lack of comprehensive supranational regulation on human tissue and biobanking can be seen as posing a serious threat to transnational biomedical research. Against this background, it was one of the aims of the EU-funded Tiss.EU project (“Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union – an Evidence-Based Impact Analysis”) to analyse the ethical and legal regulation of human tissue and biobank research across the 27 European Member States plus Switzerland. The results of nine international workshops and three conferences are gathered in this volume. While the country reports evaluate the implementation of ethical and legal guidelines at a national level, point out their strengths and deficits, and, where required, create an evidence base for the revision of said legislation, the conference reports address more general ethical and legal issues in this field. The volume is completed by a final presentation of project’s results.
    URI
    http://library.oapen.org/handle/20.500.12657/36999
    Keywords
    Tissue Engeneering; Biobank Research; Legal Issues
    DOI
    10.17875/gup2011-386
    Publisher
    Universitätsverlag Göttingen
    Publication date and place
    2011
    Classification
    Medicine and Nursing
    Ethical issues: scientific, technological and medical developments
    Medical ethics and professional conduct
    Rights
    http://creativecommons.org/licenses/by-nd/3.0/de
    • Harvested from Göttingen

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    License

    • If not noted otherwise all contents are available under Attribution 4.0 International (CC BY 4.0)

    Credits

    • logo EU
    • This project received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 683680, 810640, 871069 and 964352.

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