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dc.contributor.authorHoeyer, Klaus
dc.date.accessioned2022-02-10T10:43:47Z
dc.date.available2022-02-10T10:43:47Z
dc.date.issued2018
dc.identifier.urihttps://library.oapen.org/handle/20.500.12657/52700
dc.description.abstractBoth inside and outside the health services, patients and healthy citizens give rise to increasing amounts of health data. They are created, collected, curated, stored and used for multiple purposes in a process I characterise as intensified data sourcing. This data intensification changes how we deal with health issues. In this chapter I reflect on similarities and differences between data flows mediated by public and private institutions, using Denmark as my primary example. Denmark in interesting ways prescribes a form of solidarity that might be associated with We Medicine: people deliver data in the process of receiving, or in exchange for, publicly financed healthcare; and the data can be used for research for the common good. The solidarity of the model is currently being challenged in various ways, however, as authorities circumvent the voluntariness of participation and begin seeing health data as business opportunities. Simultaneously, a private market in health data is emerging mediated by privately owned platforms. The chapter compares the public and commercial forms of data sourcing to explore what is at stake for individuals and society in those processes.en_US
dc.languageEnglishen_US
dc.subject.classificationthema EDItEUR::M Medicine and Nursingen_US
dc.subject.classificationthema EDItEUR::G Reference, Information and Interdisciplinary subjects::GP Research and information: general::GPH Data science and analysis: generalen_US
dc.subject.otherdata sourcing; European healthcare; data flows; public institutions; private institutions; Denmarken_US
dc.titleChapter 7 Lost and Founden_US
dc.title.alternativeRelocating the Individual in the Age of Intensified Data Sourcing in European Healthcareen_US
dc.typechapter
oapen.identifier.doi10.1017/9781108590600.007en_US
oapen.relation.isPublishedBy7607a2d0-47af-490f-9d2a-8c9340266f8aen_US
oapen.relation.isPartOfBook3941bc2d-9d3d-464e-8212-3c5ad37d822aen_US
oapen.relation.isFundedBy178e65b9-dd53-4922-b85c-0aaa74fce079en_US
oapen.collectionEuropean Research Council (ERC)en_US
oapen.pages22en_US
oapen.grant.number682110
oapen.grant.projectPOLICYAID


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