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    Testing Knowledge

    Toward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto

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    Author(s)
    Solhdju, Katrin
    Rivières, Alice
    Contributor(s)
    Stengers, Isabelle (other)
    Wexler, Alice (other)
    Collection
    ScholarLed
    Language
    English
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    Abstract
    "This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington’s Disease, founded in 2012 between Paris and Brussels. Katrin Solhdju’s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all. Testing Knowledge is preceded by the Dingdingdong collective’s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington’s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions. Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers."
    URI
    https://library.oapen.org/handle/20.500.12657/47819
    Keywords
    epistemology, Huntington's disease, medicine, medical ecology, patient empowerment
    DOI
    10.21983/P3.0307.1.00
    ISBN
    9781953035455, 9781953035462
    Publisher
    punctum books
    Publisher website
    https://punctumbooks.com/
    Publication date and place
    Brooklyn, NY, 2021
    Imprint
    Ecologies Book
    Classification
    Doctor / patient relationship
    Neurology and clinical neurophysiology
    Pages
    194
    Public remark
    Funder name: Fondation Universitaire de Belgique
    Rights
    https://creativecommons.org/licenses/by-nc-sa/4.0/
    • Imported or submitted locally

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    License

    • If not noted otherwise all contents are available under Attribution 4.0 International (CC BY 4.0)

    Credits

    • logo EU
    • This project received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 683680, 810640, 871069 and 964352.

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